Día de los Muertos inspiration

I find it odd that I've been inspired to write a blog entry on the Day of the Dead. Especially since this entry is going to be primarily about how death and illness have changed me. A dear friend from college lost her teenage son, quite unexpectedly, earlier this year. To honor him and to help process her grief she started writing a blog of letters *to* her son. Honestly, those (nearly daily)letters have been a gift to me and I'm sure other friends/family who are reading them. They are funny, sad, grief filled tributes that have made me laugh out loud then cry within the same sentence. Today's entry inspired me to start writing my own thoughts again. (Not sure how long this will last but, hey, it's a start!)

This blog has morphed from a blog about Cancer treatment, parenting, recovery, death and grieving to one about single parenting and getting back out in the world without those labels of "cancer patient/survivor" or "ex-partner to sick/dying/dead mother of Sofie" as primary identifiers. Okay, the last one was a bit harsh but it's how I felt for a long time prior to and post Debra's death. I kind of got lost in all that happened. It's what I do. I push on through, not worrying about myself as much as I worry about others. It's easier that way.

I do have to say, I have changed for the better, in some aspects, as a result of all that happened during those few years. Ultimately I had to change, but I also need to change more. Life is a process, a constant growing, changing, learning, unlearning...you get the picture. I'm also the first to admit I've changed some things NOT for the better. As I said, I'm learning.

Let's get the bad out of the way because it's the hardest to write. Once this is out on the page, I can end with writing about the good. In many ways I feel I'm becoming the parent I said I'd never be. I'm not juggling very well and that creates unnecessary chaos in our lives. Instead of being organized about chores and consequences, I'm always on someone's case about all the things she needs to do in the morning, then lather rinse repeat in the evening. My overwhelm and default state of being is cranky, naggy mom. What happened to the fun mom of years gone by? I want her back, more consistently, in our lives. How do single parents really juggle work, parenting, and life without sacrificing their own personal space and life? Other parents do it with far less and I'm feeling like a spoiled middle class brat right now even writing this...but this is the bad, I do get to write some good.

This may seem ironic but one of the ways I've changed the most is that I've become a "glass half full" person as my default character. Sure, I'm whining in the previous paragraph but ultimately I know life is good great and I honestly believe it's only going to get better. Having survived Cancer opens your eyes to all that is good in life. Having survived Cancer, plus parenting a child through the death of another parent, really puts perspective on life. There may have been some "faking it until I made it" in the earlier years of this chapter in my life but I can honestly say I've become a much more positive person on the other side of things. As I'm getting closer to 50(okay, I still have a few years but I am on the down side of my 40s now!) I see more and more all the good things in life and know the bad are just lessons taught and challenges placed in order to show us we can persevere through ANYthing.

Sofie is morphing from a child to a teen right before my eyes. It's a struggle for her. She's had so much loss and she really doesn't want to lose her innocence/fun and grow up. (She's said that, I'm not making it up.) She views growing up as losing all the fun things in life. I've not been the best model showing that to be untrue.

Today I honor the old, stick in the mud Jamie. Let that part of me die, be gone. Honor that she was a necessary part of me to help transcend from single, part-time parent to single, "everything is my responsibility, especially a little girl with so much loss" parent. Focus on fun, focus on me, focus on teaching/showing Sofie that mistakes happen and it's not the end of the world. Today I begin a new chapter...unsure of the title but definitely a new chapter in the life of the complex one.

For one human being to love another: that is perhaps the most difficult of all our tasks… the work for which all other work is but preparation. – Rainer Maria Rilke

Fence sitter or what I believe about the mom who is losing custody of her children "because" she has Cancer

All my life I've considered myself someone who always sees both sides to a story, a fence sitter, as it where. That trait has benefits although it doesn't make for a passionate defender. Honestly, I wish more people could see both sides, maybe our world would be a more peaceful place to live. That's why I was surprised to my initial reaction to the story of a woman who was losing custody of her kids, allegedly for having Cancer. Of course it pushed every liberal button in my body. I was outraged that such a thing was happening and it was happening in my own backyard! This was personal, too. The five people that read my blog know what the last five years of my life have been like. For those new to reading me, here it is in a nutshell:

• Former partner(and primary care provider to our daughter) diagnosed with Ovarian Cancer(2006) after our wonderful Primary Care doctor thought something was off with the symptoms Debra had.
• Surgery and chemo begin immediately
• Three months later, I was diagnosed with Endometrial Cancer after a hysterectomy was performed due to "suspicious cells" found during a biopsy.
• As her chemo is winding down, my treatment of surgery, radiation then chemo begins.
• Less than 6 months after completing chemo, cancer returns for Debra.
• We are simultaneously going through chemo since I had 3 treatments to go.
• Debra doesn't respond well to the chemo after the recurrence and dies December 2007.

The mom in question has some major PR backing. There's a Facebook page dedicated to the "wrongness" of the actions and much of mainstream media has jumped on the "mom was wronged because she has cancer" bandwagon. Since this is a family law type issue I don't think there's a ton of  facts from either side out there. Why are we not hearing the Dad's side? Maybe he thinks the protection and privacy of his children are more important than the media show. Maybe he is a loser, although I highly doubt it since he seems to genuinely care for the well being of his children. The mom is holding onto every ounce of hope that she'll beat the cancer and I wouldn't expect anything less. Debra held on until the very end when she realized her body was riddled with cancer throughout her entire abdominal area, including her liver. It's the patients job to fight for their life! When there are children involved, it's the other parent and family to guide and prepare them through what may be the ultimate outcome...losing a parent.

When Debra and I were faced with her terminal cancer we quickly decided there was one main priority...Sofie. Not that we weren't thinking of ourselves in this situation, we were just thinking more of a little 7 year old who was about to lose a parent. We weren't living together so it took patience, understanding, collaboration and love to work through what was best for the kid...not what made either one of us feel better. We moved past our issues with the other adult and concentrated on spending quality time together and a family unit, all the while making the shift from Debra being primary parent to me being primary parent. Essentially we had 10 months from the time the recurrence occurred until Debra was arranging hospice to come assist her through the last week or so of her life.

What upsets me most about this case is the way the mother is being played the victim when actually it's the kids who are the true losers in this situation. (I am in no way insinuating she's playing the victim. Please note I said "played"...the media is really working the "because she has cancer" angle!) None of us know the full story but many folks are jumping to a conclusion (like I initially did) that may not be in the best interest of the children. As I've been pondering this case I can't help but think of how it would have affected Sofie if I weren't in the picture. Debra was really sick, especially near the end, so my condo became a place of respite for both of us. It's a time where we could spend quality time strengthening an already strong bond while others took care of Debra. There were definitely times that being around a very ill parent wore on Sofie. I couldn't imagine her having to endure that environment 24/7. I also couldn't imagine her not seeing Debra at all...thus my place firmly perched on the fence. My hope is there's a good team of people fighting for the kids in this case. A lawyer, social worker, psychologist...whoever can work together to make sure the kids get time with both parents in a way that supports their grief and growth.

What's right in this situation? Bottom line...whatever is best for the children.

A Grief of My Own

There's been much written and discussed lately about Sofie's grief and how I've been finding ways to help her explore that grief. There's also been slight mention of my grief over Debra's death, too. What I haven't been talking about with anyone other than my therapist and a few friends, is the harder grieving I've been faced with. Even now, it's hard for me to write about it without a pang of guilt, so please bear with me as I move forward.

For those of you who aren't on Facebook or one of my friends on Facebook, you may not be aware of the tough times I'm having with single parenting. Recently I jokingly posted a status update eluding to a tantrum I had that morning. It wasn't a joke. I had a major tantrum. If I'd been a toddler, my mommy would have had to drag me out of the room kicking and screaming! The catalyst for the explosion had to do with all the junk spread around the guestroom by another child and Sofie but it had nothing to do with the core of the fit I had.

Standing in the middle of our family room throwing air punches at nothing was my release that morning. (Sofie was NOwhere near me...she was in the shower, playing happily with her loofah and wasting water.) The tantrum I had was a result of me coming to the realization that I didn't ask to be a single parent and the loss of the life that went away with that change.

Please understand, this is only me expressing loss for the life I had. I love Sofie and love being her mom. I truly believe we were meant to be each others person. We're both learning and teaching so much to the other. I'd rather be co-parenting than single parenting, that's all. It's just not what I expected my life would be. I was in denial about this for first year but have slowly(and not always graciously) been dealing with this since.

There's still a bit of guilt around this for me. More so about how I am when I'm tired and cranky. The fuse gets shorter and the tongue lashings get longer. As I'm getting cranky with her she mostly throws it right back at me...which makes me crankier. Then, as I become reflective and self aware, I become sad. I don't want her to have the short fuse that seem to have when I'm overwhelmed.

This summer there will be at least 2 weeks when she's away. There will be much respite for me. For sure there will be a week in the mountains with her godmother and a week in Charlotte with both MY mother and my best friends family. Potentially, she'll be in California for a couple of weeks but I'm not 100% sure that's going to happen at this point. Whatever time she's away, I'll miss her while enjoying a touch of the freedom I once had. Hoping that time will allow me to clear my head and figure out ways to not let this get out of control like it has over the past few months.

Emotional highs and lows of parenting a grieving child

To my dismay, Facebook has taken me away from blogging as often I used to blog. It's so much easier to write a few sentences several times a day to update your friends on what's happening in your life. Recently, many of my friends probably got more information than they wanted to know. Some of my "friends" are virtual in nature...I never see them, they don't know what's truly going on in my life nor do I necessarily want to know them in those ways. However, the past month or so has been pretty emotional. Initially I had no idea what was going on with my baby girl. Yeah, I know she's almost nine and no longer a baby. But as my parents say about me, she'll always be my baby.

Much of what has taken place did so quickly. Although as life was occurring I felt a slow, stabbing pain in my heart every time Sofie was sad, crying or just plain checked out. Initially, I had no idea what was happening. It could have been a number of things. She didn't quite know what was going on for her, either. Her sadness was projected onto many "objects" including her new bed(that isn't even here yet!), her teacher, the cats, friends...you name it, something else often had misplaced sadness enveloping it. During this time, I felt so lost and alone. This aloneness created a Facebook monster who shared too much. Much of what I said was thinking outloud. Regretably, my loving friends who, try as they might, couldn't advise me and I couldn't take one sad little girls pain away.

My previous post answers the "why" to all the sadness. Simply missing Debra was the culprit. This week post Mother's Day has been very emotional. Sofie is now responding to what seems like "permission" she was given to grieve out loud. I want her pain to subside. Apparently, Mother's Day may be a trigger for her. It certainly was this year. I'll be more prepared next year...yeah, right! At least I'll be aware that there may be more heightened grieving in early May!

What's this last month been like for me? A mixture of heaven and hell. Disrupted sleep night after night does not make for a kind Mama. Constant requests for cuddles makes a swollen heart, bursting with love, Mama. Emotions all over the map. Often feeling so out of control and lost I wanted to (and sometimes did) scream! We've made it to the other side for now. The cries are farther apart. The mentions of missing Debra are less frequent. I know we'll come out of this okay. Unfortunately, the ride to the good side can be bumpy, lumpy and make Mama grumpy!

Update: Tick 2008 - Newsflash!!

After speaking with the doctor on-call at our family practice, she immediately put my mind at ease. She informed me that our area isn't one to have a high incidence of Lyme Disease. She also suggested a Single-Dose of Doxycycline as a preventative type measure. Now I can breathe a sigh of relief. Since we don't know what type tick it really was, only that it was teeny tiny, we'll "monitor" Sofie for a month making sure there's no rash or fever. Now it seems I have my own fear of bugs and what they might do to my kid. This is going to be a fun four weeks remaining of Camp Riverlea and all the creepy crawlies that go along with it. This is certainly NOT helping me deal with Sofie's fear of bugs situation.

Late night Summertime conundrum

As she was getting ready for bedtime tonight I noticed Sofie scratching and picking at a mole between her neck and shoulder. Upon further investigation I realized it was the world's tiniest tick. After successful removal...with just a few tears...we settled in for bedtime story. As I was finishing up the next to last chapter of Oggie Cooder, Sofie says to me, "Mom, I don't want to go to Camp Riverlea on Monday." Why? I ask. "I don't want to see or be around all the bugs." We chatted more about it and she has really developed a fear(a bit irrational) of bugs. She cried many tears and said "I'm afraid of bugs." I tried to explain that bugs don't harm you and won't bite/sting you unless provoked.

Now I sit hear, wide awake, after innocently looking up what that tiny tick was. (Curse me for having a librarian mind that must know everything!!) These so called tiny ticks are probably deer tick which often carry LYME DISEASE!!!!!!! She'll be pretty sure that she did nothing to provoke that tick! Now what?

Racing through my head at the moment:

• Did she have a red bulls-eye ring on her shoulder? (I don't remember!!)


• How long has that tick been there? (It was so tiny, I have no idea!)


• Did I get it all? (I think/hope/wishful thinking so)


• WHY did I flush it down the toilet? (Because.)


• Should I call Dr. Marum's on call phone? (it's nearly 130am!!) (No, I'll wait until morning...a decent hour of morning)

Needless to say, if she does have Lyme Disease this will not help the bug fear! What a way to start Summer!